Rare Disease Day 2020

Thank you for participating in World Rare Disease Day 2020 by joining us in our global campaign to raise awareness for Barth syndrome and wear #BarthBlueGenes on Friday February 28th or Saturday, February 29th, 2020.
Organize an awareness day at your school, workplace or within your community and we will send stickers and awareness materials for your to share at your event. We suggest asking for a donation of $5 per person to wear Jeans for genes on Rare Disease Day.

  Please share your contact information so we can mail you an awareness kit.

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