Together we will create a world where Barth syndrome no longer causes suffering or loss of life.
Your support today will help to save the life of someone born with Barth syndrome. Barth syndrome is a rare, life-threatening, genetic mitochondrial disorder. People with Barth syndrome, usually boys, often suffer from serious medical complications including heart failure, muscle weakness, debilitating fatigue and infection.
The mission of Barth Syndrome Foundation is to save lives through education, advances in treatment and finding a cure for Barth syndrome.
Joining #TeamBarth and getting started is easy! Simply sign up for a free awareness and fundraising Team Barth page, personalize it and invite your friends and family to make donations. Every dollar raised supports the work we do to end suffering caused by Barth syndrome. We need your help!
Click on an image below to get started!