Our Families are Counting on YOU


Saving lives through education, advances in treatment, and finding a cure for Barth syndrome.


A world in which Barth syndrome no longer causes suffering or loss of life.


Since 2000, BSF has been a lifeline for those who suffer from Barth syndrome, offering 24/7 support, pioneering standards of care and diagnosis, creating collaborations between clinicians, researchers and patients, and most importantly, making sure no person with Barth syndrome is ever alone.

Donate in honor or in memory of someone, to a specific fund or to a BSF Affiliate

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Mailing address to send donations by mail:
Barth Syndrome Foundation, PO Box 419264, Boston, MA  02241-9264
Mail-in Donation Form

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