Happy Heart Week is an annual virtual awareness and fundraising event honoring our son, Henry, and centered around his birthday, May 2nd. He is NINE this year!
Barth syndrome is a rare, life-threatening, multi-system mitochondrial disease that currently has no treatment or cure.
The purpose of Happy Heart Week is to raise awareness of Barth syndrome and to raise critical funds that are crucial to ending the suffering and loss of life caused by this dreadful disease. Our hope is for Henry to have a long and vibrant life, and your gifts this week help make our hope a reality!
Your support means so much to us and to our Barth syndrome community around the world. THANK YOU!
For more information on Henry's journey and Happy Heart Week, visit happyheartweek.com.
To subscribe to Happy Heart Week communications, visit bit.ly/HHWsubscribe.
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