Barth Syndrome Foundation

Contact Us

Contact Us Header 2

Please provide your contact information so that we can respond to your inquiry. Providing additional information makes it easier for us to get back to you.


*	First Name: Required
*	Last Name: Required
*	Email: Required
	Phone Number:
	Please check this box to receive or continue receiving periodic email updates from Barth Syndrome Foundation

Subject of Inquiry:

Question - Not Required - I, or my child, has Barth syndrome or is being evaluated for Barth syndrome

Question - Not Required - I am a physician or healthcare professional treating a patient who has been diagnosed with or is being evaluated for with Barth syndrome

Question - Not Required - I am a physician or healthcare professional interested in performing research on Barth syndrome, the Human Tafazzin (TAZ) Gene Mutation and Variation Database, and/or the the Barth Syndrome Registry and DNA Bank

Question - Not Required - I would like general information about your organization and/or Barth syndrome

Question - Not Required - I am with the media and would like to correspond with someone from your organization

Question - Not Required - I am interested in discussing drug development or partnership opportunities

Question - Not Required - Please provide your comments, questions, or concerns in the space below. Provide specific detail to help us respond more quickly and accurately. If you are a family member or individual with Barth syndrome and would like immediate assistance, please call 914-303-6323, Ext.1

*

Question - Required - Please enter the phrase shown in the following field:

Change image

About BSF

Contact Us

Privacy Policy

Terms & Conditions

Donation Refund Policy

Automated Recurring Donation Cancellation