With your help, we can help.

Because no matter how difficult, we believe every life with Barth syndrome is worth saving.

Barth syndrome is an ultra-rare and devastating disease associated with life-threatening infections, heart failure, fatigue and early death.

Together, we give hope.


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Through BSF's research grant program, your donations are changing lives through global scientific discovery.

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We are the lifeline to families and individuals living with Barth syndrome around the world, offering 24/7 individualized support, educational conferences, a patient registry, and collaborations with specialist healthcare providers to define standards of care, treatment and rapid diagnosis.

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